Objective

This study explores sources of healthcare and medical information among USA Veterans during the COVID19 pandemic. This can also help practitioners meet the information need of their patients while providing them with quality internal and external resources.

Methods

Surveys were distributed to Veteran patients in a Veterans Affairs (VA) hospital. They determined if patients used external resources for medical information, which media types were used and desired, and if there was an association between resource helpfulness and pre-determined usefulness factors.

Results

32/102 (31.4%) respondents used external resources. Patients most frequency used the Internet and expressed a desire for additional time with their healthcare provider and more educational pamphlets. Resource helpfulness was associated with increased medical information availability, improved health decisions and well-being, and having an active role in medical decision-making.

Conclusion

Patients desire more time with their healthcare provider and more educational pamphlets. Resource use was associated with several usefulness factors, although external resources were less trustworthy than healthcare providers.

Practice Implications

Practitioners can take a dual approach in delivering patients medical information. First, provide in-person information using educational pamphlets. Second, provide trustworthy external resources such as medically credible website recommendations.

Thirty-five percent of United States adults have diagnosed themselves using the Internet. Of the people who used the Internet for medical information, only 13

Surveys were distributed to outpatients at the Brooklyn VA Medical Center. A researcher explained the purpose of the survey to each patient and confirmed patient comprehension. Each survey took approximately 10 minutes or less to complete. Patients were initially asked if they received medical information from resources outside of their healthcare provider in the past 6 months. This served as an exclusionary criterion. Respondents who used external resources completed the entire survey while those who did not only gave demographic information. 

The main focuses of this study were to determine [1] where Veterans receive and want to receive medical information from and [2] why Veterans use external resources to gather medical information. To answer the first question, a list of less than ten media types were chosen at the discretion of the researchers. These include educational pamphlets, email, family / friends, Internet, television commercials, television shows, social media, and newspapers [9,13]. Patients were asked how much of their medical information they currently receive and want to receive from each of these media types based on a Likert Scale from 1 (Least) to 5 (Most). To answer the second question, overall resource helpfulness was correlated to the media usefulness factors which include increased medical information availability, improved relationships with healthcare providers, improved health decisions and well-being, and having an active role in medical decision-making [1,2,9,12,13,16]. 

Other variables were created to better understand the role of external resources in acquiring medical information. Patients who scored resource helpfulness as 3 of higher were asked why they found medical information to be helpful. Answer choices included: [1] they wished to gain more information regarding their healthcare needs, [2] they often forgot or needed to refresh what was explained at their doctor visits, [3] they looked for an online community to relate to, and [4] they want a second opinion [1,2,9,12,13]. 

Descriptive statistics were analyzed in SPSS. Paired-sample t-tests were used to determine if patients optimally wanted to receive more or less of their medical information from the listed external resources. Correlations were calculated between overall resource helpfulness and the media usefulness factors. Positive correlations indicate that patients use external resources in part due to the associated factors. Comparisons were also made between healthcare providers and external resource trustworthiness and availability using paired-sample t-tests. Multiple linear regressions were calculated to determine effects of demographics on resource use and helpfulness. 

One hundred two outpatients (96% male) completed the survey. 32 patients (31.4%) used resources outside of their healthcare provider while the remainder (70; 68.6%) only used their healthcare provider for medical information. Although not directly calculated, the researcher approximates the response rate to be around 3-7%. The most common age group was 60-80 years. Demographic data is shown in Table 1. 

Table 1: Frequency of Demographic Variables

Patients’ current and preferred use of each media type was scored on a Likert scale from 1 (Least) to 5 (Most) as shown in Table 2a. 

Note: scores range from 1 (least) to 5 (most)

Table 2a: Current and Preferred Method of Getting Medical Information

Note. M and SD are used to represent mean and standard deviation, respectively. * indicates p < .05. ** indicates p < .01. 

For Source: 1 = Healthcare Provider Only; 2 = Healthcare Provider and Media

Table 2b: Current and Preferred Method of Getting Medical Information by Age

Commonly used and preferred media types were defined as those with a score significantly greater than 3.0 as calculated through independent sample t-tests. The only commonly used source was face-to-face time with healthcare providers (4.34; p<0 p=0.01). r=44%; r=53%; r=55%; r=47%; r=39%;>

Note. M and SD are used to represent mean and standard deviation, respectively. * indicates p < .05. ** indicates p < .01. 

For Source: 1 = Healthcare Provider Only; 2 = Healthcare Provider and Media 

Table 3: Correlation Matrix for Resource Helpfulness and Characteristics

There was no significant correlation between resource helpfulness and improved relationships with healthcare providers (r=33%; p=0.068). However, during additional analysis, usefulness factors were evaluated using one-sample t-tests. Factors with scores significantly greater than 3.0 as calculated through independent sample t-tests were noted. All the usefulness factors, including improved relationships with healthcare providers were significant: increased medical information availability (mean=3.69; p<0 mean=3.38; mean=3.31; mean=3.53;>

Further analysis was done to better understand resource use in the Veteran population. Patients who answered that found external resources to be helpful with a score of 3 or higher were subsequently asked to select specific reasons why. Pre-selected answer choices included that they wished to gain more information regarding their healthcare needs, they often forgot or needed to refresh what was explained at a doctor’s appointment, they looked for an online community to relate to, and they wanted a second opinion from what their doctor told them. These were selected at the discretion of the researchers based on literature [1,2,9,12,13]. Of the 24 respondents, 11 (46%) stated that they often forgot or needed to refresh what was stated at doctor appointments, 5 (21%) patients looked for an online community to relate to, and 8 (33%) wanted a second opinion from what their doctor told them. 

Correlations were also calculated between media helpfulness and current use of each resource type. Significant positive correlations indicated that patients found media types to be helpful for gathering medical information. The only significant correlations with media helpfulness were email (r=39.3%; p<0 r=73.9%;>

Paired sample t-tests were used to compare media and healthcare providers in terms of availability and trustworthiness. Patients found their healthcare providers (4.53) to be more available than media sources (3.69; p=0.001). Patients also found their healthcare providers (4.56) to be more trustworthy than media (2.75; p<0 F(3,81)=0.081, p=0.970). xss=removed xss=removed>

Current and preferred sources for medical information were also broken down by the age groups 18-38 (n=4), 39-59 (n=9), and 60-80 (n=18) as shown in Table 2b. All source averages greater than 3.0 are referred to as common. It should be noted that these results are purely illustrative and, due to small sample size and large variability within groups, are not necessarily representative. The 18-38 age group commonly utilized face-to-face time with their healthcare providers (3.75) and the Internet (3.75). This age group commonly desired face-to-face time with their healthcare provider (4.75) and information from family and friends [3.25]. The 39-59 age group commonly used educational pamphlets, face-to-face time with their healthcare provider, and the Internet. This age group desired the use of educational pamphlets, face-to-face time with healthcare providers, family and friends, and the Internet. The 60-80 age group only commonly used face-to-face time with their healthcare providers. This age group also only commonly desired face-to-face time with their healthcare providers. The 81 and over age group only had 1 response and was, therefore, not analyzed.

4.1 Discussion 

This study’s original purpose was to determine [1] where patients receive and want to receive medical information from and [2] why patients use external resources. This was initially questioned as only 3.2% of Veteran patients use My HealtheVet, which is a free online health portal where Veterans can search for general health information online [4,19]. In finding where and why patients use external resources, healthcare providers can better understand the information needs of their patients and help guide them towards credible resources. 

Patients desired increased exposure to educational pamphlets. This is interesting as there are notable benefits to the use of educational pamphlets. Medical information is remembered better when appointments are supplemented with written information or visual aids [9]. Without any written or visual supplementation, approximately 40% to 80% of medical information delivered by healthcare professionals is immediately forgotten [9]. This problem is especially relevant to the VA population as older adults forget more information immediately [9,20]. However, educational pamphlets can still benefit younger populations who have similarly low retention rates after just one week [9]. Given this literature and patients’ desire for more educational pamphlets, they should be more available to Veteran patients. 

Patients also desired more face-to-face time with their healthcare providers. This may have various reasons; however, the ones discussed here will focus on the direct interaction between patients and healthcare providers during appointments. During appointments, patients often do not request medical information even though they desire it. One study found that even though patients overwhelmingly desire medical information, 28% of patients exhibited no information-seeking behaviors during interactions with their doctors [2]. This dichotomy between medical information desire and medical information seeking behavior suggests that Veteran patients likely desire information from their healthcare providers that they do not request during appointments. Interestingly, increased interaction time with doctors encourages medical information seeking behavior in patients [2]. Therefore, fulfilling the respondents’ request for more face-to-face time with their providers can give them the time required to request the information they desire. 

Healthcare providers should also focus on Internet use. Although the participant population did not want to increase their Internet use for medical information, it was the most used media source outside of health providers and was the third most desired source behind healthcare providers and educational pamphlets. Additionally, higher Internet use was related to higher perceived media helpfulness, indicating that patients perceive it as a good way to receive medical information. Further analysis via MLRs suggests that patients who used the Internet more often for medical information thought that media was helpful regardless of their perception of their relationship with their healthcare provider, even if this perception was negative. Therefore, healthcare providers may want to further analyze how they should interact with patients who use the Internet for medical information, especially since Internet use has risen in the Veteran population [19]. 

Since patients who use the Internet for medical information find it beneficial, wish to continue its use, use it regardless of their relationship with their healthcare provider, and since Internet use in Veterans has increased over time, healthcare providers may want to further analyze how they should interact with patients who use the Internet for medical information [19]. This is especially true when considering that literature widely suggests that the credibility of medical websites found on the Internet or used by patients is questionable [13,16,17,21]. 

Correlation results between resource helpfulness and usefulness factors suggest that patients associate increased resource use with increased medical information availability (r=44%; p<0 r=53%; r=55%; r=33%; p=0.068).>

There are many reasons why each usefulness factor would benefit patients. Medical information availability can be increased with external resources such as the Internet which is easily accessible and convenient. Health decisions and well-being is improved as the Internet has been shown to increase confidence in medical decision-making, knowledge of medical information, feelings of empowerment, compliance to treatment plans, and efficiency of clinical time [11,21]. Lastly, encouraging patient information-seeking behaviors can improve relationships with healthcare providers. This is highly dependent on physicians and will be elaborated upon later [13,18,21]. 

To better understand why patients used external resources, common and specific reasons were compilated by researchers based on literature and at their discretion [2,9,13]. These reasons were only asked to patients scored resource helpfulness as 3 or higher (n=3). Patients most commonly found media helpful to gain more information regarding their healthcare needs (92%). A large portion of patients (46%) also used media because they often forgot or needed to refresh what was explained at doctor appointments [9,12]. Additionally, 33% of patients wanted a second opinion from what their doctor told them and 21% looked for an online community with which they could relate. 

These results demonstrate that most patients who used external resources did so to gather information. This is in alignment with background research which stated that patients have a strong desire for medical information [2]. However, these results also demonstrate that patients’ use of media was multifaceted as they cited use for reasons not purely informationally driven. 21% of participants used the Internet to connect to an online community. Benefits of having an online community have been previously studied in a group of Veterans. This study found that Veteran patients who joined an online patient-driven community for epilepsy patients had increased epilepsy self-management and self-efficacy scores [5]. These results demonstrate the benefits of external resources and further demonstrate patients’ desire for having a more active role in their health decisions. 

Healthcare providers can have an important role in helping patients gather and access medical information from external resources. Literature describes three ways that providers can respond to patients talking about medical information from external resources [13,18,21]. Providers can [1] ignore the information based on the assumption that they are more credible, [2] doctors can act as collaborators, [3] doctors can give “Internet prescriptions” by giving website information to patients. This allows the patient to search through credible information on their own time [13]. The second and third interaction types are the most optimal and lead to high patient satisfaction [13,18,21]. In fact, patients felt that their relationship with their healthcare provider improved if providers with good communication skills discussed the mentioned information. Conversely, patients believed that their relationship suffered if the provider did not take their questions seriously [18]. Additionally, although answering patients’ questions may take more time, patients who obtained information from the Internet may have more efficient use of their clinical time as they seemed to have a higher level of base-knowledge of their treatment options [21]. 

Summarized, this background literature suggests that patients want healthcare providers to interpret or verify medical information from external resources. This study supports this because, even with all the benefits of external resources, overall, patients rated providers to be much more trustworthy. Therefore, it seems commonsensical that patients, who want to be active in their health decisions and want medical information, would search for information on their own time and bring it up to their providers. This also helps explain why patients might want educational pamphlets as they would be receiving them from their trusted providers. 

This study had several notable limitations. Survey distribution was not randomized as the researcher approached patients waiting for their appointments. Additionally, surveys were only distributed to those who comprehended English and were physically able to take the survey. The sample size was small as only 32/102 participants used external resources. Due to the small sample size, determining results with sub-groups was difficult. For example, only 4 non-male participants were surveyed, and only one person over the age of 81 was surveyed. Survey distribution occurred in only one VA hospital; therefore, results might not be generalizable to the VA population as a whole. Arguably, an additional limitation is that the usefulness factors often correlated to one another. Therefore, they are not independent of each other and their effects were most likely overlapping. This makes it difficult to quantitatively determine which effect was most prominent or what underlying variable or mechanism caused their interaction. Additionally, this study acts as a guideline for healthcare providers. Future studies can act upon these guidelines and determine if they improve patient satisfaction, comprehension, etc. 

4.2 Conclusion 

This study is a guideline to help healthcare providers meet the medical information needs of their patients. Veterans expressed that their healthcare providers are very available and trustworthy. This is true whether in comparison to media or as an absolute measure. However, a significant portion of participants (31.4%) still use media to supplement the services of their healthcare provider. Providers should make educational pamphlets more available as patients desired increased exposure to them, and education pamphlets can be useful in increasing patient comprehension and retention of information (6,7,8,9,10). The Internet was the most used external resource, and patients wanted to continue using it for medical information. Healthcare providers should take patients’ online research seriously to maintain their relationships with their patients. There is even precedence to encourage patients to search for medical information, especially since patients associated resource helpfulness with availability, improved health decisions and well-being, and having an active role in medical decision-making [11,13,18,21]. 

4.3 Practical Implications

Practically, healthcare providers can help meet patients’ desires for medical information by making both educational pamphlets and recommended websites readily available to patients during consultations. Educational pamphlets should have both written information and visuals while recommended websites can be written on take-home cards [6,7,8,9,10]. Additionally, educational pamphlets could have a section for recommended websites dedicated to the specific topic it discusses or visualizes. Importantly, since literature suggests that a large portion of patients do not actively ask for information, even if they desire it, healthcare providers should be the active party and ask patients if they want any additional medical information or if they want educational pamphlets or medical website recommendations [2].